Saturday, December 28, 2013

GRACIE LOU WHO


 
 
Christmas Eve, while waiting for dinner to be ready at my sister's house, we were gathered around the table watching that Christmas classic, "The Grinch Who Stole Christmas."
 
Okay, I admit that this is NOT one of my favorite Christmas movies. I don't care for Jim Carrey at all, and I find Whoville quite bizarre. But I mention it because Kristen asked me - because I often call Gracie "Gracie Lou" - if I ever called her "Gracie Lou Who". I admit, I do like this name very much and henceforth she will often be called Gracie Lou Who. That's in addition to Scooby Doo, Lucy Lou and Lulu, all derived from nonsensical pet talk.
 
This past fall I got a new (thrift shop) couch. With my previous couch, Gracie was able to walk across the top of the couch. The first time my niece's boyfriend saw her do this, he exclaimed, "What is she, a mountain goat?"
 
Due to its curved shape, the back of this couch is a bit more difficult to navigate, but Gracie does manage to walk across it, and also to lie on its back, as you can see by this photo taken by Kristen on Tuesday.
 
Unbelievably, Gracie preferred sleeping on this perch, the dining room floor, my bed, or "her" chair, to sleeping on her brand new Christmas present, a beautiful big doggie bed with blue corduroy bottom and beige fleece top. As the old saying goes, you can lead a dog to her new bed, but you can't make her sleep on it.
 
Imagine my delight this evening when she went to her bed, sniffed it thoroughly, gingerly stepped into it, circled three time and snuggled down for a long winter's nap.
 
Merry Christmas, Gracie Lou Who.



Saturday, December 21, 2013

THE CHRISTMAS SPIRIT



 
 
 
Especially for you, Leanne, a green-robed Father Christmas
 
Two people in the past week have commented here to wonder where I am. I think they meant, "Are you still alive?"
 
I am still here. My surgery went very well and my recovery went smoothly. My surgeon was able to do everything laparoscopically. I can now bend over and kneel down without pain and nausea. I can even sneeze without pain again!
 
My deck is built, my roof has new shingles and gutters were finally installed. These (including the surgery) were my big projects for the year and they are all accomplished. Of course, now I'm planning projects for next year, mostly for the yard.
 
This may end up being my one and only Christmas post. A few months ago I had thought about not having Christmas at all. With Dan being gone, I know it will not be the same. He loved Christmas!
Kristen had even invited me out to stay with her in Virginia, thinking we would be less sad, but I told her that it will be sad anywhere we are, and I didn't want to board Gracie.
 
I finally decided to observe the holidays in the full-blown way I always have. I decided that to not celebrate this most wonderful time of the year would not be fair to Kristen or to my sister's family.
 
I did break down and buy an artificial tree after 40 years of buying real trees with Dan. Although I miss the evergreen scent, I don't have to deal with a dried-out tree and needles everywhere. The tree is pre-lit with tiny white lights, which is good, because the bubble lights Dan and I always used - as a tribute to our 1950s childhoods - were becoming harder and harder to find, and the ones we had mostly quit bubbling.
 
I also did not want to drag out the 30 years of ornaments we had accumulated since our house fire in 1982, so I bought ornaments reflecting my love of nature - birds, butterflies and dragonflies.
 
Thing have not all been hunky dory in the past few weeks. We had an ice storm two weeks ago and I fell and sprained my hand. At least I was not one of the many, many Bismarck residents who ended up in the emergency room with broken bones.
 
I have also had terrible trouble with my car not starting in this awful cold. But finally - after many dollars spent,  with new battery, engine heater fixed, new plugs and points, it is ready to withstand those -20 mornings we've already experienced this season.
 
Even after this horrible, horrible year of 2013, life is full of blessings, the main one right now being the fact that Kristen flies in Monday morning! I am warm and fed and loved and gainfully employed, and will soon be celebrating Christmas with my family.
 
So Best Solstice, Yule and Christmas Wishes to all of you and hopes for 2014 to be the best ever.



Sunday, September 8, 2013

I'M STILL HERE

 
 
 

I haven't posted since July and thought it was about time I brought you up to date.

On Friday I found out that I can finally have my hernia surgery. I was supposed to have it on May 17, but in pre-op lab tests that morning they found out that my blood platelet count was very low and canceled my surgery because I would have bled to death during the operation (platelets help with the clotting of blood.)

It has been an interesting summer as they tried to find out what was the matter with me. While I was still at the hospital, they ran some tests which revealed that I had very, very low levels of Vitamin B-12, which can affect platelet production. I began having Vitamin-B injections - daily at first, and then weekly. After a month, my doctor, who is an oncologist/hematologist, said that my Vitamin B-12 count was normal but my platelet count wasn't, so that was not the cause.

To see if my bone marrow was failing to produce platelets, I had a bone marrow biopsy, which can be very painful, but lucky me, I felt no pain from it. It took forever to get the results, but finally I found out that my bone marrow is producing tons of nice, normal, healthy platelets. This showed that I did not have cancer - no leukemia or lymphoma - which was a great relief. (I got my bill on Saturday for the biopsy - $8,000, of which insurance paid $5,000.)

My doctor by then was pretty sure I had ITP, idiopathic (old term)/immuno (new term)  thrombocytopenic purpura, and that my spleen was eating up my platelets. I had an ultrasound to see if my spleen was enlarged. (It isn't.)

I also had an infusion of IVIG, immunogammaglobulin. Friday, after a four-week wait, I found out this was very successful, and my platelet count went back up to normal. (My doctor says this proves I have ITP.) Therefore, I can schedule my surgery. Five to seven days before the operation, I will have another infusion to make sure my platelet count is plentiful.

Having a hernia all summer meant that I could not bend over without nausea or pain, much less plant and weed. Fortunately, I had a lot of helpers. My first helper helped me create my Unicorn Garden, pictured above. He contributed the labor; I did the design and bought the plants.

For my gardening readers, the plants in the garden are: coreopsis, yellow lilies, orange lilies, liatris, purple prairie coneflowers, rudbeckia, salvia, yarrow, red phlox, lady's mantle, lamb's ears, veronica (speedwell), delphinium, Shasta daisies, balloon flowers, bee balm and penstemon.



My niece, Kelsey, had to take three pictures before she could get a dog-free photo! Yes, that's Gracie in the garden, holding a rawhide treat in her mouth. She probably thought the Unicorn Garden would bee a great place to hide the treat, because the unicorn would certainly protect it from thieves! (The unicorn comes from Design Toscano.)

Unfortunately I had to fire my first helper, because I believe he cheated me out of hours, so I turned to Kelsey and her boyfriend, Marcus. Between them and the guy who mows my lawn, they did just a tremendous amount of work. They hauled stuff to the dump, weeded and weeded, put up lattice panels, planted, spread grass seed on the bare spots, moved a ton of pavers, cut down grapevines which threatened to take over the yard and pruned the hedge. Kudos also to my co-worker and her fiance who put together two garden benches and an arbor.

The Unicorn Garden was the first phase of my garden design to be completed. The front yard is also basically complete. I have added dragonfly garden decorations such as flags and wind chimes, and installed a sign stating that my home is named Dragonfly House. Unlike in England, American people don't name their homes, but I wanted to name mine. It may seem  pretentious but I thought, I am an Old Lady now, I can wear purple and do as I please! And I am pleased to give my house a name!

I thought of many fanciful names, including La Maison des Roses, which would certainly fit my front yard, but decided on Dragonfly House because once a year, gorgeous giant blue dragonflies hold a convention here, perching on the front walls of my gray house. Plus, dragonflies are a symbol of great luck

Partially done areas in my backyard are my Celtic Lady's Garden, named for my blog and containing Celtic symbols such as dragons, elves and a Celtic maiden statue; my Fairy Garden which is planted with daylilies and holds many fairy statutes; and my Moonlit Meadow Garden with a moongazy rabbit, fox and barn owl statues and a Forest Lady. This is temporary planted with daylilies but will hopefully be seeded with a lot of meadow flowers next spring.

I also have a "wall" of Green Men and Women plaques, and plan to install a miniature fairy garden by the larger Fairy Garden.

The end of the growing season is approaching swiftly here in North Dakota, but I will keep you posted with photos as things progress next year, and will also keep you up to date on my surgery.

Wednesday, July 3, 2013

IT'S ALWAYS SOMETHING






I was at the clinic earlier this afternoon to see if the Vitamin B12 was helping my low blood platelet count. Now my hematologist thinks I have ITP, Idiopathic thrombocytopenic purpura, an autoimmune disease. I was hoping to find out that the tests he had done showed I had pernicious anemia, which means my body has trouble absorbing Vitamin B12, causing the platelet level to drop. That is not the case. It looks like my spleen is destroying my platelets. I am having a blood marrow biopsy at the end of July. And of course my hernia surgery isn't going to happen for a long time, as my platelets are only up to 70,000 after Vitamin B12 injections.

Sunday, May 19, 2013

MORE TROUBLES



 
 
Really? Really? Haven't I been through enough in the past year and a half? The first - and worst - that happened was that Dan was diagnosed with cancer. He went into remission a year ago April and we had a not-too-bad summer. Then, in the fall, I started having problems with my "lady parts" and had tests for uterine cancer, cervical cancer and ovarian cancer. I sweated through the results, which all turned out to be negative. I ended up having surgery and thought all was well.
 
I started having abdominal/pelvic pain and nausea around Christmas time but didn't tell anyone. Then, at the end of January Dan went instantly and profoundly deaf. Shortly afterward, he was diagnosed with a brain tumor.
 
As regular readers know, Dan's condition deteriorated swiftly. He was put under hospice care and passed away on March 23.
 
What I hadn't written in my blog is that I was having a terrible time at work and suffered extreme emotional distress over it.
 
Finally, the work problems got better about the end of April. Although I was fighting all kinds of red tape to try to get Dan's Social Security and other monthly income transferred to me, I was slowly recovering from his death.  I took time to go to my family doctor for my tummy problems and after a CT scan it was determined that I had a hernia - caused by my prior surgery.
 
I make an appointment to see a surgeon. He's a great guy - I like him and trust him and we decide I should have surgery May 17.  Okay, fine, just another thing to get through. I booked two weeks off at work and arranged for Gracie's care during my overnight stay.
 
So there I was Friday morning. My sister had picked me up at o'dark thirty. I had been poked for labs and was sitting in my (not) pretty hospital gown, already getting fluids via IV. That's when the bomb dropped. They said they had to cancel the surgery because my blood platelets were so low. My surgeon admitted me to the hospital and called in a medical doctor to run a bunch of tests.
 
Your blood platelet count should be no lower than 150,000. Mine was at 49,000. The doctors were concerned that my count had fallen so low so quickly because they were at low normal when I saw my doctor in April.
 
They took enough blood to satisfy a vampire for six months. They decided I didn't need to sit around in the hospital waiting for results so they sent me home at 5:00. I will be seeing a hematologist in about a week.
 
There could be a lot of reasons for low blood platelets - or the official term, thrombocytopenia. It could be as simple and fixable as a vitamin deficiency. Or, it could be worse. So here I sit, playing the waiting game yet again.
 
Really? Really? Haven't I been though enough lately?


Saturday, May 18, 2013

CONGRATULATIONS, MINNESOTA!


 
 
 
Congratulations to my cousin, Kevin (white shirt,) and his husband, Will (behind him to the right) on the marriage equality bill being signed in Minnesota.
 
Kevin and Will have been through a civil ceremony in Iowa and a religious (Lutheran) ceremony in Minnesota, and they say two ceremonies are enough, but congratulations to all the other gay Minnesotans who can now marry and have equal rights under the law with any other couple.
 
A comment posted on Kevin's Facebook page:

Christopher Hoven: And if Hubert H. Humphrey were alive today, he'd probably say, "My fellow Minnesotans, today we have stepped out of the dark shadows of state's rights and have walked into the bright sunshine of human rights, of civil rights!"
 
I have power over comments and will not allow any gay-bashing ones on this post. It's time to come out of the Dark Ages, people. Please don't tell me God loves the sinners but hates the sin. God doesn't think homosexuality is a sin. And guess what, that guy in the red and white striped shirt? He's a pastor. 'Nuff said.


Sunday, May 12, 2013

HAPPY MOTHER'S DAY



 
"THE LANTERNS"
Charles Courtney Curran
 
 
Happy Mother's Day to all who celebrate it on this day. Happy Mother's Day especially to my sister, Glori, and to my sisters-in-law who read my blog, Bonny in Idaho and Dana in Virginia. Also Happy Mother's Day to my Mom in heaven.
 
I was dreading Mother's Day this year, because it is the first Mother's Day without Dan. Of course, Mother's Day is for children to honor their mothers, but Dan always got me a present too. The very first time, I was still pregnant, 7 months along. He gave me a floral arrangement in a blue, white and green large ceramic cup. A month later our home was destroyed by a fire, but I still have that cup, because I had had it at work. It was among the first things I brought into our new home.
 
For the past 25 years or more, Dan had bought me a hanging fuchsia basket to hang on the deck. It has become a family tradition. I was sad this year that I wouldn't be getting a fuchsia.
 
Imagine my surprise and delight when I got home from work Friday afternoon and there was a giant fuchsia-and-white colored fuchsia on my dining room table. When Kristen was home for Dan's funeral she had given Glori the money to get me one for Mother's Day. Talk about a thoughtful daughter!
 
Of course, my best Mother's Day present has always been Kristen. I had trouble with carrying babies and lost two before her and two after her. She was the only little soul to survive to birth.
 
And I am so glad she was the one. She's always been such a good kid. I remember one time when she was little the house got very quiet and I decided I'd better go see what she was doing. I found her sitting on the kitchen counter, the lid off the sugar canister and mountains of sugar all over the counter. I didn't get mad - I was too shocked.
 
In that way, she was very unlike her dad when he was growing up. His mom, Lillian, told the story of how she was always having to tell his older brothers to "Go find Danny and tell him to stop it."
 
Kristen, you are so smart, funny, sensitive and caring. You're so beautiful too - and your beauty is on the inside as well as the outside. Thank you for being my daughter.
 
As for myself, I continue to recover from Dan's illness and death. Work is going much better now, but I am still trying to fight with pension fund holders and oil well companies to get the income Dan was receiving each month. One happy surprise was how easy and pleasant it was to set the wheels in motion to get his Social Security.
 
Another pleasant surprise was how swiftly the life insurance was handled by the North Dakota Public Employees Retirement System. Now that I have insurance, I am busy arranging for a new roof and a new deck, without which I will never be able to sell the house, should I ever decide to sell.
 
And also, I am getting a new front door. The door we have is original to our 1929 stucco bungalow, and the inside door knob fell off so many times we started using a needle-nose pliers to open the door (Necessity is the Mother of Invention). My brother-in-law, Dick, had been worried for my safety so Dick, you will be glad to know, yes, I have set up an appointment for someone to come by and measure for a new door.
 
Glori and I treated ourselves to a modest Mother's Day lunch at Fried's German Restaurant in Mandan yesterday. We were happy to note that the forsythia is in bloom, and I saw a few yellow tulips, though most were still only in bud.
 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
 
The painting above is featured in a gift book called "My Wish For You". The wish that accompanies this painting is "Many Lovely Evenings". I wish many lovely evenings for all of you this summer.



Tuesday, March 26, 2013

POEMS FOR DAN





 
STOP ALL THE CLOCKS
W. H. Auden
 
Stop all the clocks, cut off the telephone,
Prevent the dog from barking with a juicy bone,
Silence the pianos and with muffled drum
Bring out the coffin, let the mourners come.

Let aeroplanes circle moaning overhead
Scribbling on the sky the message He Is Dead,
Put crepe bows round the white necks of the public doves,
Let the traffic policemen wear black cotton gloves.

He was my North, my South, my East and West,
My working week and my Sunday rest,
My noon, my midnight, my talk, my song;
I thought that love would last for ever: I was wrong.

The stars are not wanted now: put out every one;
Pack up the moon and dismantle the sun;
Pour away the ocean and sweep up the wood.
For nothing now can ever come to any good.
 
 
Kristen and I are having this read at Dan's funeral. (And when the time comes, ours.) We know we won't be able to read it ourselves on Thursday so the chaplain will probably read it.
 
I am still thinking of writing a eulogy. If I do, part of this poem will be included in it:
 
DO NOT GO GENTLE INTO
THAT GOOD NIGHT
by Dylan Thomas
 
Do not go gentle into that good night,
Old age should burn and rage at close of day;
Rage, rage against the dying of the light.
Though wise men at their end know dark is right,
Because their words had forked no lightning they
Do not go gentle into that good night.
Good men, the last wave by, crying how bright
Their frail deeds might have danced in a green bay,
Rage, rage against the dying of the light.
Wild men who caught and sang the sun in flight,
And learn, too late, they grieved it on its way,
Do not go gentle into that good night.
Grave men, near death, who see with blinding sight
Blind eyes could blaze like meteors and be gay,
Rage, rage against the dying of the light.
And you, my father, there on the sad height,
Curse, bless me now with your fierce tears, I pray.
Do not go gentle into that good night.
Rage, rage against the dying of the light.

 




Saturday, March 23, 2013

DANIEL BRUCE FREDERICKSEN, BELOVED HUSBAND AND FATHER





HAPPIER DAYS

"Home is the hunter, home from the hill, and the sailor home from the sea."

On March 23, 2013, Dan Fredericksen slipped away without pain and crossed over to a place where the October skies are always bluebird blue, the game is always plentiful and the hunting dogs always behave.

Daniel Bruce Fredericksen was born in Williston, ND, on Aug. 5, 1948, to Earl and Lillian Fredericksen. He fell in love with the great outdoors at an early age, while on pheasant hunts with his father and older brothers, and camping trips with the Boy Scouts. He achieved the rank of Eagle Scout in high school. He was also introduced to the joys of fishing on family trips to Lac La Ronge, Sask. In later years he loved to fish for walleye on Lake Sakakawea and Lake Oahe.

He graduated from Williston High School in 1966 and entered the Navy that summer. He joked that he joined the Navy to see the world, but all he saw was California and Vietnam.

After receiving medical training at Camp Pendleton Naval Hospital in Oceanside, CA, he spent a year in Vietnam during 1968-1969, serving as a Navy medical corpsman attached to the 3rd Marine Battalion. He was known as "Doc Fred" by his comrades. He saw action during the famous New Year's Tet offensive. He was wounded in action and received the Purple Heart.

After leaving the Navy he attended Minot State College and worked as an ambulance driver. In 1970 he was selected from among thousands of applicants to be a member of the University of North Dakota's first-ever physician's assistant or - as it was known then - MEDEX program. At that time, only medics and corpsmen were selected for training as PAs. He trained at UND and in Langdon, ND, working with Dr. Bill Goodall and Dr. Nick Kaluzniak and the staff of Langdon Hospital and Langdon Clinic He spent five years as a physician's assistant in Langdon, and was known affectionately by all as "Doc." He was initiated in the art of goose hunting while living in Langdon.

On June 29, 1974, he was married to Julie Johnson in Langdon. The next year they left Langdon so that Dan could pursue a four-year degree at the University of North Dakota. He loved getting together with his friends from the UND Vets' Club to trade war stories. He also formed hunting friendships that lasted all his life.

In 1981 Dan accepted a position with Syntex Pharmaceuticals in Bismarck. This was the beginning of a long pharmaceutical sales career. He also worked for Bristol-Myers Squibb and Innovex. In later years he worked for Eide Ford in Bismarck.

Dan and Julie's daughter, Kristen Anne, was born on July 9, 1982. She was the light of his life and he was a terrific dad. He was extremely proud of her academic record and her accomplishments. He was also "Dad" to Val, our foreign exchange student.

Again in Bismarck Dan formed lifelong hunting bonds with new friends, and re-connected with old Williston pals for fun trips back to that area for yearly pheasant hunts. He also hunted grouse, ducks, deer and antelope in North Dakota, and deer and elk in Montana. He was so excited to bag an elk that he called Julie with his news from the side of a mountain.

He was a good golfer, an avid reader and a great amateur gourmet cook until his illness kept him from enjoying these hobbies. He loved to sit out on the deck of a long summer evening and he liked watching the History Channel, the Hunting Channel, and any sporting event on TV. He stayed loyal to the Vikings in good times and bad, and never missed, if he could help it, a televised game featuring his beloved UND Sioux Hockey Team. He was teased for watching his "redneck" shows, like Pawn Stars, Storage Wars and Moonshiners.

He was a kind, caring and generous husband. He always did sweet little things like starting Julie's car for her on cold winter mornings, even after he became ill. He was proud of his long marriage and had wanted to make it to his 39th wedding anniversary in June. One of his favorite leisure activities after retiring was to hang out with his pals at Sidelines in Bismarck.

He almost always had a canine companion or two by his side, starting with his boyhood dog, Copper, and later Jacques, Beau, Lady, Brandy, Penny and Gracie.

He was diagnosed with Stage IV gastroesophageal cancer in December 2011. After chemotherapy, he went into remission in April 2012 and remained in remission for 10 months. In February, he was diagnosed with leptomeningeal disease, a rare cancer of the lining of the brain.

He is survived by his wife, Julie, Bismarck; daughter, Kristen, Alexandria, VA; brothers Gordon (Sue), Oroville, CA, Dick (Bonny), Meridian, ID, and Scott (Dana), Great Falls, VA; sister-in-law Glori Fagerland, Lincoln; 10 nieces and nephews; numerous great-nieces and -nephews; and "adopted" second daughter Valentina Casas, Caracas, Venezuela. He was preceded in death by his grandparents and parents.

Thursday, March 21, 2013

UPDATE ON DAN

I know some people are wanting to hear news about Dan so I will write a short post. Dan's condition continues to deteriorate. He cannot eat and takes in very little fluids either. He is extremely thin and his balance is very poor. He spends most of the time lying on the couch. Though deaf, he can watch close-captioned TV, but is no longer able to concentrate on books or newspapers.

He is now under hospice care and the nurses and the social worker have been, for the most part, wonderful. I truly believe they are guardian angels in human form. Hospice is all about the patient's choice. Dan  is a very stubborn man and is at the point where he is refusing to be shaved, bathed, have his teeth brushed or his clothes changed. But that is HIS CHOICE. He also refuses the hospital bed we had brought in, plus the walker, plus the commode. He gets very angry when we try to offer him help of any sort. This is hurtful to me, but Kristen keeps reminding me that it is the brain tumor talking, not him.

By choosing hospice care he is able to have his main end-of-life wish fulfilled, which is not to be hospitalized, and to have only palliative care.

He is not in pain but has meds available for pain, anxiety and nausea. My sister is watching him for 10 hours a day so I can continue to work as long as I can because I have very little vacation time and even less sick leave. I spent most of last week at home and was able to use family sick leave for that.

My biggest frustration is trying to get some respite care arranged for me to have a few free hours on the weekend, but so far it has been a battle of agency red tape.

I wouldn't wish this situation on my worst enemy. More than anything it is mentally exhausting, but I feel physically drained as well. I am sure that the support of my family and my friends in blogland has helped keep me sane and putting one foot in front of the other for this long. Thank you so much.

**********************

ADDED LATER:

The hospice nurse was able to bathe Dan this afternoon, get him into a gown and get him into the hospital bed. He looks very warm and comfortable now. Some say there are no coincidences. A co-worker of Amy, one of our hospice nurses, grew up in Langdon, ND, where Dan was a physician's assistant for five years. Dan used to work with this lady's mother at the Langdon Clinic and the daughter remembers him too (from the 1970s!). Yesterday Amy brought over a beautiful quilt given to Dan by these two long-ago friends.

Wednesday, March 6, 2013

VALERIE HARPER HAS SAME CANCER AS DAN

I just read that Valerie Harper (TV's Rhoda) has the same rare cancer as Dan does. Click on this link:

http://tv.yahoo.com/news/valerie-harper--tv-icon--diagnosed-with-terminal-brain-cancer-130901236.html

Sunday, March 3, 2013

DAN

Around the end of January or the beginning of February, Dan went profoundly deaf literally overnight. An MRI test at the Fargo VA and a consult with a neurologist revealed a brain tumor. At the time, we were not sure if the tumor was cancerous or benign, new or metastasized.

Dan visited his oncologist in Fargo last Wednesday and the news was grim.  She told him he is out of remission and the cancer has spread to the lining  of his brain, taking the form of leptomeningeal brain disease, a fancy way of saying cancerous meningitis. Needless to say, as a deaf patient he had a difficult time getting information about his condition, but I was able to speak to her by phone on Monday.

What is so ironic is that the original tumor at the juncture of the esophagus and stomach, after being shrunk by chemo, has not grown. It did not spread to the liver or lungs or anywhere in the chest or abdomen. Instead, in a very, very rare occurrence, a few cancer cells escaped into his bloodstream, went into his spinal column, and traveled to his brain. If this had not happened, he might have enjoyed the 4 or 5 years of remission that his oncologist had suggested might happen.

In addition to being deaf, he now experiences trouble with his gait. He shuffles when he walks and needs to grab onto things for support. All kinds of other neurological symptoms may develop. He is not, however, in any pain.

It is very likely we will not see our 39th wedding anniversary at the end of June. We have done a lot of crying, and then we went on to taking care of finances, getting paper work drawn up, talking about palliative care and hospice, etc.

All through this time (he was diagnosed on Dec. 9, 2011, five days after I started), work has been a respite for me, a chance to forget things for a while. But now things are horrid at work so there is no release for me, anywhere.

Life is hell for us and our daughter. Kristen is coming home on Thursday. She had plans to come home at Easter but the oncologist advised her to come now, because, she said,  with a brain tumor, "there's no telling when."

Please keeps us in your prayers, not for a miracle, but for the most pain free, easy passage we can give this dear husband and father.
---------------------

PS - I'd better not hear from anyone accusing me of feeling sorry for myself. You will get an earful, and your sorry comments will not be printed.